“Why can’t you be more spontaneous?!”

Undiagnosed autism means you might act, speak or be in a way that others don’t  like.  I see so many stories on social media about this.

This is another area where I struggle to identify with the experience of other autistic people. In my diagnostic assessment, I scored in the 96.4th percentile for masking and in the 94.2nd percentile for assimilation.

What do those numbers actually mean? It means I masked at a very high level, frequently and with more intensity than 96.4% of other diagnosed autistic people. It means that I adopted behaviours, language and cultural norms to fit in, at a higher level and intensity than 94.2% of other diagnosed autistic people.

But those high scores belie the untold toll of exhaustion and turmoil, the contributing factors for C-PTSD that I would likely be diagnosed with, should I be interested in such a diagnosis.

(I’ll post about late diagnosis,C-PTSD, masking and assimilation on another day.)

“Why can’t you be more spontaneous?” That’s the way my autism runs.

Masking and unmasking

My difficulty in being spontaneous is related to my autistic need for routine and structure.  Changes in plans or routines can be disabling; masking and assimilation means covering that up so my distress is not seen.

Since my autism diagnosis, I’ve been working on unmasking,  unwinding all those things that cause internal stress simply by virtue of being aware of my differences.

The challenge is engaging with society, unmasked.

“Why can’t you be more spontaneous?” That’s the way my autism runs.

A Francophile and Brisbane’s annual French Festival

I’ve been aware that I need to start getting out and about again. Since my diagnosis, I’ve been a bit reclusive, not going out much,  just going out for my Shebah work and groceries, and the occasional movie.

I heard promotions for the 2024 French Festival, and decided I would go. I bought a three-day pass, thinking that it would Gove me some flexibility around Shebah bookings.

I went along, catching the bus down to South Bank. Getting to the festival was easy. My autism made the rest of it tricky.

My planning was simply to go to the French Festival. I didn’t plan for what to do at the festival. And that was my unmasked downfall.Wandering aimlessly might sound wonderful to some people. For autistic me, it was distinctly uncomfortable.

“Why can’t you be more spontaneous?” That’s the way my autism runs.

Regathering and planning another outing

After thinking deeply, on the bus after leaving the festival,  on the drive from the bus station to home, and at home,  I realised that the discomfort I was in was from the aimless wandering.

Hence, I then planned outings that I could set up a program for; no aimless wandering.

… drumroll … The Ekka.

The Ekka, or more correctly, the Royal Queensland Show, is a celebration of agriculture and a joyful meeting of country and city in the Brisbane CBD. It started in 1876, and has run every year since except for:

  • 1919 – because of the influenza epidemic;
  • 1942 – during World War Two,  the showgrounds were used by the military, including what we now know as The Old Museum;
  • 2020 and 2021 – during the Covid-19 pandemic.

Yes, the Ekka is an institution.

My Ekka memories

I went to the Ekka many times as a child. My parents bred and showed dogs, so we were at the dog show that is part of the Ekka. We had backyard chooks, so I would go to the poultry pavilion.

I remember sitting in the stands at the main arena, watching the cattle and horses being paraded, the horses being put through their paces in dressage and show jumping.

I remember the Ekka “must dos”; the showbags which, back then, were sample bags; the dogwood dogs, the fairy floss and the now famous strawberry sundaes.

The Ekka 2024

I bought a ticket for Tuesday,  because at the dog show, Tuesday was the day for Terriers (Group 2). I grew up with Australian Terriers and Scottish Terriers that were showed. Of our dogs, in the 1970s, we had three champions (Australian Terriers) and one triple champion (Scottish Terrier). So, yes, there is a connection to Group 2.

But then,  I heard a callout for volunteers for The Common Good, the charity that put on the strawberry sundae stands, raising funds for The Common Good, the Prince Charles Hospital Foundation. I decided to register as a volunteer.

Ekka Strawberry Sundaes

My autistic heart was singing. Registration was easy, on-boarding was slick and well done. I signed on for four shifts as a Cashier.

The Ekka runs for nine days, from Saturday to Sunday on the following week. My four shifts were from 5pm to 9.30pm, Sunday, Wednesday, Thursday and Sunday.

First shift, at the Gregory Terrace stand. They had four cashiers for two registers,  so I volunteered to stay out the back,  cutting and slicing strawberries. For the first shift, I was very nervous, and anxious. So when they  needed strawberries cut,  I jumped in.  Having a knife in my hand, a cutting board in front of me and food to be prepared; that’s my happy place.

Second shift, at the Plaza stand. They only had one register, and was on that register for my full shift. Busy, busy,  busy.  And I had a golden moment.

Third shift, back at the Gregory Terrace Stand, on the registers. A negative experience.

Fourth shift, at the Gregory Terrace stand, in the registers. Good as gold.

“Why can’t you be more spontaneous?” That’s the way my autism runs.

The golden moment

At the Plaza stand, we had two cashiers for one register, so one of us ran the register and the other handed across the card that was to be presented at the next window to receive your sundae/s.

I was on cards when I noticed a young man come up, wearing a sunflower lanyard. I noticed his speech pattern, eye contact, and the way he moved,  and knew he was autistic. As I handed him his card, I told him that he was “doing great,  autistic brother,  from an autistic sister”.

His smile, and the slight change in his posture, made my day.

So imagine my delight when he came back, later in the evening. He looked at my name badge, and in a measured way, called me by my name, and said I was also doing great,  “autistic sister, from an autistic brother”.

I nearly cried.

If you have any hidden disability, you know how moving it is to be seen. My words obviously affected that young man, the same way his reciprocation moved me.

When I think about that young autistic man, going to the Ekka on People’s Day, usually the busiest day of the Ekka, my heart swells. (Autistic hyperempathy.) Deploying his coping strategies, not masking, wearing the sunflower lanyard, moving about the Ekka.

So yes, I’m counting those combined experiences as a golden, precious moment.

The negative moment

At the start of each shift,  I disclosed my autism. On the third shift, another cashier was a retired teacher. My experience with her was less than stellar. She questioned my diagnosis and didn’t believe it was possible to be diagnosed so late in life. I had to explain Level 1, 2 and 3 support needs for autistic people.

Later in the evening, this person socially excluded me from the social chat among the cashiers at the end of the shift. 

I had a little RSD (Rejection Sensitivity Dysphoria flare, but then reminded myself – it was her loss, not mine.

In conclusion

So, no,  I didn’t get to see the dog show. I did have a fantastic experience volunteering for The Common Good. And I had that golden moment.

I’ve bought myself a sunflower wristband and pin, so maybe there might be more autistic recognition, and potential for more golden moments.

Going to big event, with a definite plan of what to do, made a big difference in my autistic experience at The Ekka, in contrast to the aimlessness French Festival.

My next test of my coping strategies at an event will be a trip to the Eat Street Markets at Hamilton. A plan – to explore it as it is now, and have something to eat.

Here’s to the next steps in my journey as a late diagnosed autistic women.

Need for cognition – by way of intrinsically motivated learners and self-directed learning

In another engagement with generative AI, I asked ChatGPT about “need for cognition as a concept to intersect with intrinsically motivated learning and self-directed learning. Why? Because I’m dissatisfied with the university experience, both on campus and remotely. But I want to learn, I need to learn. That’s the “need for cognition”, which I will consider to be part of my flavour of autism.

This is what ChatGPT had to say.



All my life, the erroneously neurotypical life, I wanted to go to university. As a “2e” undiagnosed autistic girl, learning was incredibly fun. As a hyperlexic undiagnosed autistic girl, I read anything and everything. The 1932 edition of “Charles Mee’s Encyclopedia for Children” was rich pickings, as was the much more current World Book Encyclopedia set. If you remember that beauty, you’ll remember that the dictionary came in two volumes, A-L and M-Z. I read both volumes. University was a dream from my teenage years, and people in my life spoke of it as an unquestioned expectation. Yet, life happens, and I never made it to university. Only once I was widowed did I see the opportunity to finally go to university.

From 2022, as an undiagnosed autistic, mature age student, I struggled at university. I did well in some things, but my undiagnosed autism was a hindrance. My autism diagnosis in late 2023 was a revelatory experience. The last eight months of exploring autism, and my flavour of autism has been fascinating, and I understand myself so, so, much better. I understand the PDA (pathological demand avoidance aka perpetual drive for autonomy) and the issues it causes with assessments and due dates; the RSD (rejection sensitivity dysphoria) that is the inner child so easily hurt by a turn of the head, let alone group work issues; the gestalt learning and thinking that seems to be the antithesis of university course curricula.

My latest learning has been about “need for cognition”. I don’t care about external recognition. I just want information, not the certificate and the mortarboard. I want to learn, and engage, and synthesise. I want to come up with questions to lead me down another rabbithole. Which leads me to think that going to university is not what I actually wanted. Auditing university courses would be more my style.

Which leads me to self-directed learning, adult style.

The clever people at the Centre for Teaching Excellence at the University of Waterloo (Canada), came up with this Independent Studies: Unit Planning Decision Guide. They say that “the following questions are meant to guide you through the process of designing a “course” or unit of study. Take time to reflect on them to help create a cohesive, concrete plan.”

Now, way back in the early years of my working life, I was a workplace trainer and assessor, an old BSZ40198 Certificate IV. I wrote and delivered training courses, starting from corporate needs and working backwards to develop training material to get team members to that outcome. So, why can’t I do that for myself?

Thankfully, this unit planning decision guide is published under Creative Commons, allowing others to “remix, tweak and build upon our work non-commercially”, with the proviso of credit and an indication if changes were made. So here are my tweaks.

  1. Where are you?
    • What is your background?
    • What prior knowledge do you have of this material?
    • Where does this unit fit with your degree requirements special interests, current affairs or anything else?
    • What are your beliefs, attitudes, skills, values, and support structure, both in life and as a student?
  2. Where do you want to go?
    • What would you like to get out of this unit (knowledge and skills)?
    • What do you want to be able to do once the unit is over?
    • What will you have to know in order to do the items listed above?
  3. How will you know you got there?
    • How can you assess your learning achievements?
    • What types of evaluation methods will suit the goals you outlined for question two (e.g., essay, presentation, annotated bibliography, webpage)?
  4. How are you going to get there?What general structure of activities do you want to use? You can design your own, or use one of the following activity structures:
    • Read-write-AI chat: Sequence of reading, reflective writing, and discussion with advising faculty member AI.
    • Do/look-read-talk: Start with some field or lab work, followed by readings and discussion with advising faculty member – write-ups of experiential work can be included
    • Know-do-do: Work through a series of stages – build some background knowledge of skills, work on smaller application projects, conclude with larger, more complex project
    • Talk-read-write: Start with some intensive meetings with advising faculty member AI to discuss material, read recommended resources, prepare written work
  5. What are you going to do?
    • What specific activities will you use to attain each of the goals for question two, in keeping with the general strategy chosen?
    • Critically evaluate these activities. Is reading/writing/reflecting, etc. enough to attain the desired amount of learning?
  6. When are you going to do what?
    • Develop a week by week schedule for the whole term
    • What activities need to come first?
    • What activities do you want to conclude with?
    • What sequence makes sense for the middle?
  7. Who/what can help?
    • What resources do you need to support each of the goals listed for question two?
    • Include people, places, community, articles, media, library, and advising faculty member resources
  8. How will your work be assessed?
    • Who will do the assessing?
    • What activities will be assessed? (Not all activities may require assessment)
  9. Communicate Develop your plansIt is now time to develop your learning contract plan. A sample learning contract and tips on developing the contract are available from Centre for Teaching Excellence. The contract plan should include:
    • Goals for the unit
    • Structure and sequence of activities
    • Timeline for completion of activities
    • Details about resource materials for each goal
    • Assessment procedures
    • A section for advising faculty member AI feedback and evaluation as each goal is completed
    • May include a plan for regular meetings with advising faculty member and other unit policies, such as work turned in late
    • Once created, contracts should be assessed by the advising faculty member. What could go wrong? Is there too much or too little work? Is the timeline and evaluation reasonable?
  10. How will you know how the unit is going?
    • What kinds of feedback will you need?
    • How often should you meet with the advising faculty member?
    • What specific questions do you want answered as each goal is achieved?
    • Do some self-evaluation as you progress to help you stay focused

So there we are. Designing my own course and lesson plan, then embarking on that course, and getting ChatGPT to ‘mark’ my work. So just what might the autistic polymath with a magpie mind want to research? Oh, my, so much. In no particular order:

  • The Vienna Convention
  • Hildegarde of Bingen
  • The history of Druids
  • The history of the nations of my genetics
  • Studies on AI learning to read human minds
  • Consciousness of animals
  • Autism… of course
  • Masking hypermobility
  • Autistic bodies and exercise
  • Autistic bodies anhd nutrition
  • DNA analysis
  • Etymology
  • Aromatherapy (existing special interest)
  • The history of cooking (existing special interest)
  • 3D printing and coding (existing special interest)
  • Best practice in palliative care, terminal care
  • Grief in different cultures
  • The history of woodworking in different cultures (existing special interest)
  • Western herbal medicine (existing special interest)
  • Quantum mechanics
  • Cognitive psychology
  • Writing
  • And so, so much more.

Dancing to the beat of different drum has never been more true. My drum, my drumbeat, my dance.