The Chiaroscuro Anthology,  15/19

Ultrasound heart
By Lee-Anne Ford

The double-edged sword of memory,
A blade that grinds the soul with emery.
Raw nerves exposed, yet must stay composed—
No mercy in eternity.
A gallery of snapshots, a series of slides,
Each moment frozen, no film to rewind.
Not a story, but a slideshow,
People and places etched in time.
Mama’s battle with a cake tin—before it flew out the window.
Papa’s thousand-yard stare—when she wished to be widow.
Piper, proud in the show ring, a Scottie with ‘it.’
Pine plantations standing in serried ranks,
like soldiers guarding a farmer’s shadow.
Yet memory, too, holds the weight of the unknown—
The reprimands, the demands, the silent groan.
The Bolshie stall, my defiant refrain—
A little PDA, a little disdain.
Abandoned friendships, where I thought them perfect rhymes,
Each one lost before its time.
Imagine an image in high definition,
Every feature crisp, every frame precision.
Textures, light, and echoes sound—
Each a mind’s own locus, bound.
Some memories cut like bitter glass,
Some bloom as sweet as wine.
Autistic memory does not fade,
Singular, sharp, defined.
We recall what you forget,
We see what you let blur.
Not better, not worse—
Just. Different.

They Say I Shouldn’t Be Here: Redefining Longevity on My Own Terms

🕯️ A Note Before the Next Poem

Science by ChatGPT. Emotions by me.

This isn’t a poem. It’s a rupture.
A palate cleanser between verses, with another poem; one not part of the Chiaroscuro Anthology, but one born of topical rage.
A reckoning that interrupts the flow.

On 5 April, I turn 53.
According to the statistics, I shouldn’t expect to live much longer.
This post is for every autistic woman who was erased by research, sidelined by medicine, or written out of longevity science entirely.

It’s not pretty. But it’s mine. And it is the reason the poems exist.


Literature Review: Life Expectancy in Autistic Women by Support Level

Despite increasing awareness of autism across the lifespan, autistic women remain dramatically underrepresented in mortality research, especially when it comes to parsing outcomes by support level (Level 1 vs Level 3).

Key Study: DaWalt et al. (2019)

DaWalt and colleagues tracked 406 individuals with autism over 20 years. They found:

  • 6.4% died during the study.
  • Average age of death: 39 years.
  • Primary causes of death: cancer, heart disease, accidents, medication complications.
  • Strong predictors: low early social reciprocity, poor daily living skills.

This aligns with Hirvikoski et al. (2016):

  • Average life expectancy in autism: 54 years.
  • With intellectual disability: 40 years.
  • Suicide prominent, especially in higher-functioning autistic adults.

Other studies (Croen et al., Nicolaidis et al., Mouridsen et al.) reinforce:

  • Poor healthcare access.
  • High comorbidities.
  • Elevated all-cause mortality.

Autistic Women: Still Largely Ignored

  • Late diagnosis → prolonged trauma exposure.
  • Higher suicidality (Hull et al., 2020).
  • More likely to mask, burnout, be misdiagnosed.
  • Hormonal & autoimmune issues often overlooked.

Estimated Life Expectancy

GroupEstimated Lifespan
Level 3 Autistic Women40–53 years
Level 1 Autistic Women60s–70s
General AU Women~83 years

Diagnostic History: Erased, Delayed, or Denied

Benchmarking Temple Grandin

Diagnosed in the 1950s at age 3—seven years after Kanner’s paper. Language-delayed. Visible. White. Middle-class. Rare.

Most women since:

  • Misdiagnosed: anxiety, BPD, depression.
  • Pathologised: controlling, dramatic, manipulative.
  • Dismissed: too smart, too intense, too sensitive.

Autism in DSM-III (1980), revised in DSM-IV (1994)—still male-centric. DSM-5 (2013): First real acknowledgment of a spectrum.

Impact:

  • Late diagnosis = prolonged harm.
  • No data = no funding.
  • No funding = no interventions.

What isn’t counted, doesn’t live as long.


David Sinclair and the Neurotypical Fantasy of Longevity

His Research

  • Sirtuins and resveratrol: longevity genes, debated effects.
  • NAD+ metabolism: energy, aging, DNA repair.
  • Epigenetic reprogramming: Yamanaka factors in mice, potential age reversal.

What’s Missing?

Neurodivergent people. Disabled bodies. Trauma physiology. Sensory systems.

He writes about longevity like everyone has the same nervous system. We don’t.


Blistering Insight: The Deadly Consequences of Exclusion

Meditation and RSD

“Close your eyes. Breathe deeply.” For autistic people with Rejection Sensitive Dysphoria (RSD), silence is where shame howls. Guided visualisation? Not with aphantasia. Mouth breathing? Sensory hell.

ARFID and Food “Rules”

Processed food = safety. Predictable texture. Tolerable taste. Forcing whole foods can induce panic, vomiting, shutdown. Feeding tubes? Sensory nightmare. Malnutrition? Real, deadly, unmeasured.

Exercise and Hypermobility

Generic “movement is medicine” ignores Hypermobility Spectrum Disorders (HSD). Injury risk, fatigue, overstretching—worsen outcomes if poorly understood.

Stress, Shutdown, Burnout

  • Autistic burnout: neurological, not just emotional.
  • Shutdown = disconnection, immobility, medical avoidance.
  • Stress leads to inflammation → telomere shortening → early death.

Citations: Hull et al. (2020), Autistica UK, multiple lived experience reports.

This is life-threatening omission masquerading as wellness.


The Human Cost

RSD and Ideation

Workplace fear wasn’t abstract. One mistake meant:

  • Job loss.
  • No income.
  • Loss of housing.
  • Loss of care home for my husband.

Indexed life insurance. No suicide clause. $820k. Twice, unmanaged RSD brought me to ideation. 

ARFID, Egg Whites, and Medical Trauma

Childhood: forced to eat egg whites. Backyard chickens. No escape. The trauma never left. I survived by becoming selective. Strict. Safe.

Talk Therapy as Adult ABA

“Reframe that.” “Breathe.” “Visualise peace.”

  • Mouth breathing = distress.
  • Silence = RSD.
  • Imagery = impossible with aphantasia.

Healing shouldn’t mean pretending to be neurotypical.


What Gets Left Out of the Longevity Conversation: Me

I’ve never done an annual check-up. Never had a pap smear or bowel screen. Never been hospitalised.

Why? Because I was never safe. Because no one knew I was autistic. Because every medical touchpoint reinforced trauma.

I live. I breathe. I do my best. And I am still here.


I Am Here: Redefining Longevity on My Own Terms

Not cold plunges. Not biohacking. Just this:

  • Sunday meal prep
  • Nesting tasks
  • Managing my nervous system
  • Rebuilding trust with my own body

Supplements and Supports

  • NAC
  • Curcumin BC95
  • Ginseng
  • Magnesium glycinate, threonate
  • Vitamin C
  • Nutritional yeast
  • Herbal liver and kidney support

HSD Awareness

  • HSD-aware osteopath
  • Movement adaptations
  • No more shame for “clumsiness”

Spitting in the Eye of Your Statistics

I am 53 this year. I am Level 1. My life expectancy? 67. The age I can access my super. How convenient.

Your stats say I won’t be here. So let me say it back:

I defy your statistics. I spit in their eye.


Lies, Lies and Damned Statistics: Lies of Longevity

By Lee-Anne Ford

Statistics. Lies, lies and statistics.
Damned statistics, they say.
Probabilities. Calculations.
Actuarial triumph in play.

Welcome to my life after death—
Actuarial calculations demand.
Welcome to my outrageous breath.
Statistics, my end, command.

Australian woman: expect average.
Life expectancy of eighty-three.
For near fifty years, I expected
Retirement plus fifteen, plus three.

But when love becomes anticipated grief—
Not the romantic, love born of chivalry,
But the love of caring, feared destitution,
Fated phone calls: will it this one be?

Sixteen years of what-if, how, when,
Acting typical when not—ASD unknown.
Do this, try that, be like, kowtow now,
When the ultimate curveball is thrown.

Widowed. Free. Long years and tears ahead—
The most stressful event in existence.
But when I say it like this, you hear that:
Not normal. Not like. Deviation resistance.

Expectancy—now it’s sixty-seven.
Tell me, please, what can I do?
Longevity tricks don’t work for me.
That’s every trick, not just a few.

Betrayed by society, research, and genes.
Autism: disordered, deviation from norm.
Some must wonder, crying, “Why?”
Why have you made me this reviled form?

Then woman. Women. Not little men—
But erased once, and now erased again.
Misogyny. Harassment. Abuse. That’s life.
Some want us invisible again. Their shame.

So: statistics. Lies². Damned statistics.
Actuarial calculations adjusted.
Autistic life expectancy: sixty-seven.
And wife of HD—twelve years, rusted.

Actuarial calculations complete.
Scratching heads. Flummoxed me.
Average expectancy now: fifty-five.
Yet this year, I turn fifty-three.

Not a case of thirty years to go.
But two. Just two. It’s clear.
My female actuarial value?
They say I won’t be here.

So: autistic rage and defiance.
I defy your actuarial rhyme.
I AM HERE. Changing the world—
One conversation at a time.


In the margins: naturopaths. Western herbal medicine. Reiki. Hot stone massage. They didn’t save my life. They helped me stay.

My mob… is not a minority

The outrage of 1 in 4.

Minorities. It’s easy for society to overlook minorities. That’s why Diversity, Equity and Inclusion (DEI) programs are so important. (America, take note.)

Tenants? Minority. Disability? Minority.

But how much of a minority is my new mob, the neurodivergent mob. Bigger than I thought.  “1 in 4” big. 25%. A substantial minority.

If a disease had a 25% fatality rate…

If cyclones had a 25% crossing rate…

If planes had a 25% of crashing on take off…

If, if, if. 25% is not to be sneezed at  or disrespected.  Yet, collectively,  neurodivergent people are folded, spindled and mutilated. $3 an hour in sheltered workshops. Low employment rates. Erased in plain sight.

25%.

Here’s ChatGPT’s interpretation of my refusal to let 25% be ignored. And another mention of my new intellectual crush…


1 in 4: Understanding Neurodivergence and Its True Prevalence

In recent years, the term neurodivergence has gained traction in discussions about education, workplace accommodations, and healthcare. But what does it actually mean? How does it manifest in real life? And just how common is it?

The answer to that last question might surprise you. Neurodivergence isn’t a rarity—it’s the norm for at least 1 in 4 people, meaning that a quarter of the population experiences the world through a different cognitive lens. Yet, society often operates under the assumption that neurotypical cognition is the default, making life unnecessarily difficult for millions.

Understanding neurodivergence—its prevalence, history, and societal implications—isn’t just about increasing awareness; it’s about challenging outdated assumptions and redesigning the world so it works for all brains, not just some.

What is Neurodivergence?

Neurodivergence is an umbrella term referring to natural variations in human brains and cognitive processing. It encompasses conditions such as:

Autism

ADHD

Dyslexia

Dyspraxia

Tourette’s syndrome

Dyscalculia

Obsessive-Compulsive Disorder (OCD)

Bipolar disorder

Epilepsy (which often has neurological overlaps)

Acquired neurodivergence (from brain injuries, PTSD, stroke, or conditions like long COVID)


Coined within the framework of the neurodiversity movement, neurodivergence challenges the traditional medical model, which historically treated these differences as deficits that needed to be “fixed.” Instead, it frames them as variations that come with both strengths and challenges.

The neurodiversity paradigm, championed by sociologist Judy Singer in the late 1990s, positions neurodivergence as a fundamental aspect of human diversity. Just as biodiversity strengthens ecosystems, cognitive diversity strengthens human society, leading to unique insights, creative breakthroughs, and alternative problem-solving strategies.

How Common is Neurodivergence?

The 1 in 4 statistic may seem high, but when you break it down, it becomes clear why it’s actually a conservative estimate:

Autism occurs in at least 1–2% of the population, with rising numbers due to increased recognition.

ADHD affects 5–10% of people, many of whom remain undiagnosed well into adulthood.

Dyslexia impacts 10–15%, making it one of the most common learning differences.

Dyspraxia affects 5–6% of people, influencing motor coordination and spatial awareness.

Mental health conditions with neurological components, such as OCD, bipolar disorder, and epilepsy, also fall under the neurodivergent umbrella.


When we take a broad view—including both lifelong and acquired neurodivergence—the 1 in 4 estimate starts to seem not only accurate but possibly too low.

The Historical Context of Neurodivergence

Neurodivergence is not a modern phenomenon. Throughout history, individuals with neurodivergent traits have existed—but their treatment has varied wildly depending on cultural and societal context.

Some societies recognized and even valued certain neurodivergent traits:

Many indigenous cultures saw individuals with unique cognitive or sensory traits as shamans, seers, or keepers of oral tradition.

Leonardo da Vinci, Nikola Tesla, Emily Dickinson, and Alan Turing—all believed to have been neurodivergent—made groundbreaking contributions in their respective fields. And, more recently, we might consider Lee-Anne’s newly discovered philosopher, Maurice Merleau-Ponty, whose phenomenological work on perception, embodiment, and sensory experience aligns deeply with autistic ways of processing the world.

The stereotype of the eccentric genius, often depicted as socially awkward, hyperfocused, or unconventional, may stem from historical figures who today would be recognized as autistic or ADHD.


However, other societies treated neurodivergence with suspicion, isolation, or outright cruelty. The 20th century saw particularly harsh treatments, from institutionalization to forced sterilization under eugenics programs. Even today, many neurodivergent individuals struggle to access support due to lingering biases.

Understanding this history is crucial—it shows that neurodivergence has always existed, but its perception has been shaped by cultural narratives rather than objective truths.

Misdiagnosis and Intersectionality in Neurodivergence

While 1 in 4 people may be neurodivergent, not all have equal access to diagnosis or support. Women, people of color, and those from lower socioeconomic backgrounds are significantly more likely to be misdiagnosed or overlooked entirely.

Women and Misdiagnosis

Because traditional diagnostic criteria were based on male presentations, many autistic and ADHD women are misdiagnosed with:

Anxiety disorders (especially social anxiety)

Depression (due to burnout from lifelong masking)

Borderline Personality Disorder (BPD) (due to emotional dysregulation)

Bipolar disorder (mistaking fluctuating energy levels for manic episodes)

Eating disorders (when sensory issues around food go unrecognized)


This has led to generations of #ActuallyAutistic women discovering their diagnoses only in adulthood, often after a lifetime of feeling “wrong” without understanding why.

Race, Class, and Neurodivergence

The racial and class disparities in diagnosis are stark:

Black and Hispanic children are less likely to be diagnosed with autism than their white counterparts, even when exhibiting the same behaviors.

Low-income individuals may not have access to specialists who can provide an accurate diagnosis.

Cultural expectations often lead to neurodivergent traits being seen as “bad behavior” rather than as neurological differences.


This means that neurodivergence is not just about the brain—it’s about how society interprets and responds to neurological diversity.

The Role of Technology in Neurodivergent Visibility

In recent years, social media and digital spaces have allowed neurodivergent people to find each other, challenge misconceptions, and advocate for systemic change.

The #ActuallyAutistic movement has helped shift the conversation from cure-based narratives to self-advocacy and acceptance.

The rise of self-diagnosis as a valid first step has given many individuals access to understanding and community before seeking formal medical recognition.

Neurodivergent creators are challenging stereotypes and educating millions on platforms like TikTok, Instagram, and YouTube.


Technology has also changed accessibility:

Text-based communication (rather than phone calls) benefits those with auditory processing issues.

Flexible, remote work environments have allowed many neurodivergent individuals to thrive.

Assistive technologies, from speech-to-text software to sensory-friendly apps, are making daily life more navigable.


Final Thoughts: A Philosophical and Sociological Perspective

Philosophically, neurodivergence forces us to redefine intelligence and normalcy. The Enlightenment’s focus on logic and rationality shaped modern institutions—but who decided that linear thinking, eye contact, or standardized learning methods were superior? If intelligence is about creativity, problem-solving, and adaptability, then neurodivergence is an asset, not a flaw.

Sociologically, if 1 in 4 people are struggling to function in a system, the problem isn’t the people—it’s the system. Schools, workplaces, and healthcare models must adapt, moving away from rigid expectations and toward true inclusivity.

Recognizing and accommodating neurodivergence isn’t just about individual rights—it’s about designing a world that truly values the full range of human cognition.

Neurodivergence is not an anomaly—it’s part of what makes us human. And it’s time the world started acting like it.


Here is the link to the transcript of the conversation with ChatGPT.

The Fulcrum of Neurodivergence

If we are different, what is normal?

All my life, I have danced to the beat of a different drum. Being autistic, albeit undiagnosed, explains that. One characteristic I have discovered about my autistic thought is that it loops and swirls. And therefore, is very oppositional to the concept of the “average woman”, let alone the “average man”. And that the word normal is actually rooted on a carpenter’s square? that is singularly offensive, to me.

A long time ago,in a journal, I wrote about the original meanings of suave, debonair, seeing them as singularly male descriptives, yet in origin, they means very different things. Suave from Latin suavis, meaning agreeable or sweet. The Collins dictionary, today, defines it as “(esp of a man) displaying smoothness and sophistication in manner or attitude; urbane”. Debonair, from Old French via Latin, meaning of good lineage, good family. The Collins dictionary, today, defines it as suave and refined, carefree; lighthearted; courteous and cheerful; affable. The way language shifts means it is alive. I would not describe anyone as suave to mean “agreeable or sweet”. The same way I would not use ‘sophistication to mean lies, a la sophistry.

But I take a great deal of umbrage that ‘normal’ is derived from a carpenter’s square.

Human nature, thought and existence is not nicely squared up at 90 degrees. Therefore, to me, normal is a most disagreeable word. Yet it is at the root of our modern society, in concept and in fact.

Yet. I. WILL. REBEL. I will colour outside the lines. I will step outside the box. Always have, always will.

Yet it strikes much differently, knowing I am autistic. Of course, unmasked me colours to my lines, has a different shaped world outside the box. Always have been, always will be.

In this post, ChatGPT clearly elucidates all that I detest about the construct of “normal”.


What is normal? A deceptively simple question, yet one that sits at the heart of how society constructs meaning, power, and identity. If neurodivergence is, by definition, a divergence from a supposed norm, then where, exactly, is that norm located? And more importantly—who gets to decide?

For every dys (dyslexia, dyspraxia, dyscalculia) and every hyper (hyperlexia, hyperfocus, hyperempathy), there is an implied middle—a so-called equilibrium against which all deviation is measured. The problem with this concept is that it assumes a fixed, objective standard from which some people stray too far in one direction or another. But what if the middle is not a universal truth, but rather a cultural construct?

This question isn’t just theoretical; it has real consequences. The way we define normal determines who gets access to resources, who is marginalized, who is celebrated, and who is pushed to the fringes. The idea of normalcy is woven into education systems, workplace policies, and medical diagnoses. But before we can deconstruct it, we need to ask: where did this concept come from?


The Origins of “Normal”

The idea of normality as we understand it today is relatively recent. In pre-modern societies, there was no singular standard against which all people were measured. People existed in a web of different roles, each with its own expectations. A person’s value was often determined by their contribution to the community rather than their adherence to an abstract standard.

That changed in the 19th century, when statistics and industrialization reshaped our understanding of human difference. The word normal comes from the Latin normalis, meaning “made according to a carpenter’s square,” implying a rigid, straight, and measured standard. In the early 1800s, the Belgian mathematician Adolphe Quetelet applied statistical analysis to human populations, developing the concept of the “average man” (l’homme moyen). His idea suggested that the most common traits in a population were inherently the most desirable. This was one of the first steps in transforming what is statistically frequent into what is morally and socially ideal.

By the late 19th century, the growing fields of psychology, eugenics, and medicine took this concept further. Intelligence testing, psychiatric diagnoses, and public health measures all began reinforcing the idea that deviation—whether in intellect, behavior, or ability—was something to be managed, corrected, or eliminated.

In short, the definition of normal was not discovered—it was invented.


The Tyranny of the Middle

The middle is often framed as the ideal—the place where abilities and behaviors are neither too much nor too little. The Goldilocks zone of human cognition and behavior. But this notion of balance is not neutral—it is, in fact, a value judgment. To be in the middle is to be acceptable, to be unremarkable in a way that requires no intervention.

Yet, for neurodivergent people, the middle is a mirage. It does not reflect an authentic, lived experience but rather a societal expectation imposed from the outside. It is an abstraction that exists only in statistics and policy, not in real life.

This is where injustice creeps in. Because the idea of the middle is tied to the concept of deviation, and deviation carries weight—often, the weight of being deemed broken, disordered, or in need of fixing.

Consider the term twice exceptional (2e). A person is deemed both gifted and disabled because their abilities do not neatly average out to “normal.” A child may be hyperlexic—reading fluently at age three—but struggle with motor coordination or social interaction. A teenager may have exceptional mathematical ability but need accommodations for ADHD. Instead of being seen as whole, they are labeled with contradictions. Their strengths do not cancel out their struggles, nor do their struggles erase their strengths. But the system demands categorization.

The irony is that the middle, this supposed point of balance, is itself a fabricated benchmark. The real human experience is not a bell curve but a vast, multidimensional landscape.


The Harm of Standardization

The tyranny of the middle becomes most evident when we look at how systems—education, work, and daily life—are designed to favor predictability over individuality.

1. Education: The Myth of the Average Student

  • Schools are built around the idea of an “average learner,” despite overwhelming evidence that no such student exists.
  • Neurodivergent students are often either left behind or forced to conform through rigid behavioral expectations.
  • Gifted students with executive dysfunction are labeled lazy, while autistic students are told they are “too smart” to need accommodations.

Sir Ken Robinson famously said, “We are educating people out of their creativity.” In many ways, we are also educating people out of their natural cognitive styles, demanding compliance over curiosity.

2. Work: The Standard Worker Model

  • Productivity is measured in hours at a desk rather than the quality of output.
  • Social networking and performative teamwork take precedence over genuine contributions.
  • Office environments are designed for extroverts, penalizing those who work better in solitude.

Imagine if workplaces were built around different cognitive strengths rather than forcing all employees into a singular mold. What innovations have we lost because the right minds were placed in the wrong environments?

3. Everyday Life: Sensory and Social Norms

  • Many social expectations (eye contact, small talk, body language) are culturally specific, yet enforced as universal.
  • Public spaces are designed for neurotypical sensory tolerances, often overwhelming autistic individuals.
  • The assumption that everyone should thrive in the same conditions leads to needless suffering and exclusion.

“Fixing” vs. Accepting Neurodivergence

At the heart of this discussion is a fundamental question: is neurodivergence something to fix, or simply a different way of being?

The medical model of disability frames neurodivergence as a disorder—something to diagnose, treat, or correct. The social model of disability, by contrast, suggests that the real issue is not the neurodivergent individual but the way society refuses to accommodate difference.

The neurodiversity movement challenges deficit-based models. It suggests that cognitive differences are just that—differences, not inherent flaws. The problem is not the divergence itself but the way in which society demands conformity to an arbitrary middle.


Beyond the Binary of Normal and Abnormal

Perhaps the real question is not “Where is the middle?” but rather “Why do we need one?” The idea of a singular equilibrium point is an illusion. It does not account for the fluidity of human experience, the spectrum of abilities, and the shifting nature of what society deems valuable.

Instead of measuring ourselves against a fictitious middle, what if we embraced multiple fulcrums—each valid in its own right, each a center of gravity for a different way of thinking and being?

This would not mean abandoning structure but rather restructuring—not bending neurodivergent people to fit the world, but bending the world to include them.


Conclusion: The Right to Exist Outside the Middle

Neurodivergence is not a deviation from the middle. It is a center in its own right.

And perhaps, in the end, the real injustice is the insistence that we must all balance on a single point, when we were never meant to.


The full chat with ChatGPT is here.